Fickle Friday: Week Recap
Posted: May 31, 2013 Filed under: being Korean, Down syndrome, emotional stuff, kids, medical stuff, personal growth, the future | Tags: Down syndrome, Homeschooling, humor, inappropriate humor, medical intervention, Parenting 14 CommentsI’ve been trying to write on and off all day. Maybe because I’m sleep deprived, maybe because my mind is trying to hold too many things all at once. My heart is fickle today. The kids, disability, laundry, extra chromosomes, preschool, echocardiograms… Sometimes I feel like my skull is full of marbles just crashing into each other at random intervals. I think I have maybe five really big posts in my head and I can’t seem to get any of them out. Bullocks. Read the rest of this entry »
Let’s Talk About Sex, Baby.
Posted: May 23, 2013 Filed under: advocacy, Down syndrome, kids, the future | Tags: disability, Down syndrome, inclusion, modelling, sexuality 28 CommentsYeah, LP is the ripe old age of six months, and I’m ready. It’s totally time, don’t you think? Read the rest of this entry »
Every Day: Shifting the Narrative
Posted: May 2, 2013 Filed under: advocacy, Down syndrome, the future | Tags: advocacy, Down syndrome, Robert Ethan Saylor, Special Needs, Zero Dark Thirty 16 CommentsDown Syndrome Uprising (DSU) is hosting a blog hop about every day advocacy. The question DSU poses is: What does your every day advocacy look like? For me, it is about shifting the narrative. Every day, every single one of us participates in a collective narrative. Every word we choose becomes part of this narrative. The idea of being an advocate doesn’t come naturally to me; LP had to shove me into that role. Nonetheless, now that I’m here, I’m having a hard time shutting up.
I have three stories… Read the rest of this entry »


