Why I Write

There are moments in a person’s life that change everything.  Birth.  Marriage.  Death.

Until the point of LP’s birth, I had experienced quite a few of those life changing moments.  I don’t minimize their impacts on me.  Finding love, losing family, creating life, each one of those altered me in ways I will spend my life trying to comprehend.

Learning that my son had Down syndrome, however, was unlike anything I had ever experienced.  It fractured my world in a way that I feared could never be repaired.  The first moment I suspected it was like the tiniest of pebbles, flying and hitting a car windshield.  That small pebble created a web of cracks and fissures, shattering what I thought were my hopes and dreams for the future.

What I didn’t know, however, was that all that broken glass would give way to something amazing.  Nothing is broken.  We are happy.  Everything is as it should be.  I’m still figuring it out.  I’m also seeing more light than I had ever realized was possible in this life.

Here’s the beginning of that story.  


21 Comments on “Why I Write”

  1. Rob Arnold says:

    You and your husband have beautiful kids!

  2. leticia says:

    Really enjoyed reading your blog. I am particularly inspired by your passion for advocacy and your courage to draw a line in the sand on certain issues. I have just started my own blog and am still working out how to balance the desire to discuss certain issues with the desire to remain inclusive and supportive to our community. I think you have the balance just right. Looking forward to reading more! And your little cherubs are very cute! Wade is my only child so far and is 16 months.

    • jisun says:

      Thank you! I actually really struggle with this balance so I was so glad to read this. I’m looking forward to checking your blog out, I can already tell there is a very cute little boy at the center of it all! :)

  3. Jisun,

    I am in awe of you. What you wrote in your “Why I Write” piece was prolific, heartfelt and amazing. And I love your spunkiness…I think I need to adopt some of that in my own blog. Best wishes!

  4. Maddy says:

    Jisun, you inspire me…thank you mama !

  5. Mom-of-one says:

    Hi – I just wanted to say that, in this world full of negativity, mindless internet chatter, social-media bullying, etc., you and your husband are such a positive force to be reckoned with. I tune into your writings from time to time and am always so impressed and inspired by your warmth, honesty and integrity. I could say a lot more, but you get the idea! Thank you for making the internet/blogger-world a more meaningful place! :-)

  6. renatembell says:

    I’m so glad I found your blog today! I look forward to reading more about your amazing journey with LP, Mouse, Chipmunk, and Latkes. Best wishes to all of you~ xoxo

  7. Thank you for sharing your thoughts.Your blog is inspiring.

  8. I just stumbled upon your blog and this really resonated with me. My daughter is almost 7 months and has CHARGE Syndrome. Finding out the extent of her challenges after she was born was devastating but slowly life is reshaping itself into something great. It took me a long time to begin to see the positive, but now that I do I can already see I’m changed and for the better. You’re kids are adorable. I’ll be following your journey!

    • jisun says:

      Hi! I’m so glad to hear from you. I’m really fascinated by the similarities between all of us, especially the first year. Congratulations on your daughter!

  9. Florence Montierth says:

    Beautifully put, this Journey into Down syndrome . I don’t know why am writing, other than the fact that I have a three-year-old who has down syndrome as well. We didn’t know until 10 days after he was born. The other reason I suppose is because I am a Chinese descent.when my parents found out about my boy they told me that they wish they could congratulate me but could not find it in their hearts to do so. At least for me, it has been harder to find acceptance culturally among the Chinese community for him. I love my boy, he is sure a monkey and between him and the other three kids my hands are very full. But I wouldn’t change it for the world! Best wishes to you and yours.

    • jisun says:

      Hooray for four kid families! Yes, I’ve found that the disability + Asian experience has been different as well. Some bad, some good. And definitely underrepresented out there, I’m hoping to change that, because I think we offer something to both worlds, right? So glad you commented, best wishes to your family as well. xo

  10. I also have a special needs daughter. She has intellectual disability and seizure disorder and a lot of symptoms that come with Down syndrome- like low tone from head to toe. She is now almost ten. Glad to have found you. It’s nice to meet other mommy writers/bloggers to share our stories with. Cheers to you on your journey!

    http://www.mommy-diary.com


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