Down Syndrome, Science, and Mystery
Posted: July 8, 2013 Filed under: advocacy, Down syndrome, medical stuff | Tags: chimerism, chromosomal abnormality, Down syndrome, genetics, mosaic Down syndrome, Trisomy 21 25 CommentsMystery. The unknown. The misunderstood. Science promises to unravel many mysteries. What mysteries about my child with Down syndrome might science unravel?
Becca from The Bates Motel poses this topic in this blog hop (go hop around and read, just make sure you come back, you dig?). While I must say I don’t think research will unravel any mystery about my individual child, I do want more research. I want it badly. Why? Researching Down syndrome could shine new light on the entirety of our genetic existence. Read the rest of this entry »
Is Unschooling Our Path to Real Inclusion?
Posted: July 2, 2013 Filed under: disability, Down syndrome, education, kids, The System | Tags: Down syndrome, Education, homeschool, Special Needs, Trisomy 21, Unschooling 10 CommentsSchooling. Achievement. Ability.
Of course my children would go to school. And of course they would rock it. That is what you do. That is what I did.
I’m not sure anymore. Read the rest of this entry »
Heat
Posted: June 28, 2013 Filed under: kids | Tags: Motherhood, Parenting, summer 5 CommentsIt is hot.
Sweat-snaking-down-your-body-like-the-Amazon-through-the-sweltering-South-American-jungle kind of hot.
I sit in our backyard and the dark flagstone patio sends up a shimmery curtain of heat. The girls are running through the sprinklers in their swimsuits, their small bodies whirling in the water, just so. LP is blowing spit bubbles and smiles when his sisters comes close. It’s pretty damn good.
When the weather gets hot, I think of what grows. Peaches, berries, corn. Sunflowers. The days get light, the earth produces its abundance, Mother Earth’s metabolism kicks up. At the same time, I think of preservation—canning all that life, heat, abundance for some future moment.
I look at my three children in the shimmer and sparkle of today, and I want to preserve this as well. All three breathtaking bodies, laughing, yelling, moving in the heat. In a decade, or two, when I open this preserved moment, I hope it is all still here, burning bright.
Happy Friday. Go make a memory. xox
Kimchi Latkes 