Nightmare Come True: Police Training, Autism, and Down Syndrome

Sometimes I spend time worrying about my infant son’s future.  My son with Down syndrome.  My son with a disability.  My son, a human being.

Among the things I worry about is that the world will see him as nothing but a problem.  An anomaly, a special circumstance, some thing to be “handled” and “managed”.  I worry that people will take one look at him and hold him up to a stereotype, and he’ll never have a chance to be fully human.  If he matches the stereotype, everything he says or does will be a foregone conclusion.  If he deviates from the stereotype, he’ll be nothing but an even greater abnormality.

My fears became reality today. Read the rest of this entry »


Wednesday Words: Milestones

mile·stone
ˈmīlˌstōn/
noun
1. a stone set up beside a road to mark the distance in miles to a particular place.
2. an action or event marking a significant change or stage in development.

I’ve been pondering the word milestone.  Not only are there many milestone discussions in the parenting world at large, but they seem to double and triple in number after having a child with disability.  This seems like a completely understandable phenomenon, of course.  Having a child with a developmental delay is bound to result in some extra attention paid to milestones.  Yet, as understandable as it is, I’ve participated yet resisted without truly understanding why. Read the rest of this entry »


Wednesday Words: On Being Grateful

grate·ful (grātfəl) adj.
feeling or showing an appreciation of kindness; thankful.

There’s a story floating around the internet this week, about a mystery diner who paid for a family’s dinner after seeing the family’s little boy lose his cool in the restaurant.  The boy is nonverbal as a result of a severe form of epilepsy.  The diner also sent over an anonymous note, which read “God only gives special children to special parents.” Read the rest of this entry »


Design a site like this with WordPress.com
Get started