From the Daddy Desk: An Open Letter to New Fathers

Posted: April 2, 2013 | Author: | Filed under: Down syndrome, From the Daddy Desk, funny stuff, marriage, the husband | Tags: , , , | 27 Comments

Call me Latke.

This is an open letter to all you fathers who are new to Down syndrome. Just a list of five things I’ve learned so far:

(1) Your wife will join a Facebook group for mommies of kids with Ds. Upon joining, she will instantly become BFFs with 100 people you’ve never met. Be prepared. These people will never stop communicating with each other.

Ever. Read the rest of this entry »

Robert Saylor’s death is not about lack of Down syndrome awareness.

Posted: March 27, 2013 | Author: | Filed under: advocacy, Down syndrome | Tags: , , , | 17 Comments

Yeah, I really do think this.  I’ve used this blog to talk about our family’s personal experiences, but Robert Saylor’s death is a scary glimpse into LP’s (possible) future, and I really need to get this off my chest. Read the rest of this entry »

Being Systematized

Posted: March 22, 2013 | Author: | Filed under: Down syndrome, parenting, The System | Tags: , , , , , , | 9 Comments

We went to LP’s assessment for EI services this week.  The assessment consisted of a doctor and our services coordinator asking me a bunch of questions, the service coordinator leaving halfway through to attend another meeting, and LP getting tired and mad about yet another poking and prodding session.  I’m pretty sure the little dude swore at me afterwards.  Fortunately, he doesn’t know how to make any consonant noises.  So it was more like “Aaahhh… Ooooouu”.  I’m onto you, LP.  I know you didn’t want to follow pen lights around or show off your tunny time skills, but that is no way to speak to your mother.
Read the rest of this entry »

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