Status Report.
Posted: February 22, 2013 Filed under: Down syndrome, medical stuff | Tags: Down syndrome 3 CommentsWell, the taters are all asleep, and it is Friday night. Had a friend over, ate some takeout. Pretty good. Here is what is going on in our little corner of the world…
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I’m trying to be a better beach bum.
Posted: February 20, 2013 Filed under: personal growth, the future | Tags: fishing, hardship, parenthood 4 CommentsSometimes expectation is like being on an island. I have been planning, hoping, and dreaming on this island. This island is where expectation is supposed to come be reality.
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Ok, I guess it has to start somewhere.
Posted: February 19, 2013 Filed under: medical stuff | Tags: Down syndrome 4 CommentsWell, I’m pretty sure that LP has something called laryngomalacia. It is basically medical gobbledy-gook speak for when a person’s airways are floppier than usual. There are different reasons for it, but in LP’s case, it is probably caused by his hypotonia (another gobbledy-gook term for low muscle tone). It hear from other moms that there is a higher likelihood of also having something called a laryngeal cleft, which as far as I can tell is a congenital issue with the way that part of the trachea forms that causes food or fluid to pass into the airway.
What does this mean? Could be nothing. Could be a fairly big something. Read the rest of this entry »


