Down Syndrome, Science, and Mystery
Posted: July 8, 2013 Filed under: advocacy, Down syndrome, medical stuff | Tags: chimerism, chromosomal abnormality, Down syndrome, genetics, mosaic Down syndrome, Trisomy 21 25 CommentsMystery. The unknown. The misunderstood. Science promises to unravel many mysteries. What mysteries about my child with Down syndrome might science unravel?
Becca from The Bates Motel poses this topic in this blog hop (go hop around and read, just make sure you come back, you dig?). While I must say I don’t think research will unravel any mystery about my individual child, I do want more research. I want it badly. Why? Researching Down syndrome could shine new light on the entirety of our genetic existence. Read the rest of this entry »
Is Unschooling Our Path to Real Inclusion?
Posted: July 2, 2013 Filed under: disability, Down syndrome, education, kids, The System | Tags: Down syndrome, Education, homeschool, Special Needs, Trisomy 21, Unschooling 10 CommentsSchooling. Achievement. Ability.
Of course my children would go to school. And of course they would rock it. That is what you do. That is what I did.
I’m not sure anymore. Read the rest of this entry »
I’m Removing My Prenatal Testing Halo.
Posted: June 19, 2013 Filed under: Down syndrome, emotional stuff, personal growth | Tags: Amniocentesis, CVS, Down syndrome, miscarriage, Mother, pregnancy, Prenatal diagnosis 53 CommentsI have had my moments of self-righteous judgement. Shocking, I know. I’ve strapped on my righteous halo in secret, just for comfort.
In the early weeks after discovering LP has Trisomy 21 (Down syndrome), I spent time pontificating on life and riding some emotional waves. During that time, for a brief moment, despite all my reservations on prenatal testing, I wished we hadn’t opted out. For a brief moment, I thought we should have terminated.
For that brief moment, I felt a lifetime of guilt. Read the rest of this entry »
Kimchi Latkes 