I Support Unicorn FartsPosted: February 12, 2014 Filed under: advocacy, disability, Down syndrome, personal growth | Tags: disability, Down syndrome, Parenting, Prenatal diagnosis 47 Comments
There’s this thing. It happens in the Down syndrome community. (I think it happens in other places too, but I can only speak to what I know.)I call it the unicorn fart phenomenon. Read the rest of this entry »
Down Syndrome Diagnosis: Dear New ParentPosted: October 31, 2013 Filed under: advocacy, Down syndrome | Tags: Children, Down syndrome, Genetic disorder, hope, Love, Prenatal diagnosis 27 Comments
Dear New Parent,
If you have found this place, you may have just discovered that your baby has Down syndrome. You are likely standing at a fork in the road. Whether your baby has been born yet or not, you’ll need to make choices now, in action or thought, that will change you forever.
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I’m Removing My Prenatal Testing Halo.Posted: June 19, 2013 Filed under: Down syndrome, emotional stuff, personal growth | Tags: Amniocentesis, CVS, Down syndrome, miscarriage, Mother, pregnancy, Prenatal diagnosis 53 Comments
I have had my moments of self-righteous judgement. Shocking, I know. I’ve strapped on my righteous halo in secret, just for comfort.
In the early weeks after discovering LP has Trisomy 21 (Down syndrome), I spent time pontificating on life and riding some emotional waves. During that time, for a brief moment, despite all my reservations on prenatal testing, I wished we hadn’t opted out. For a brief moment, I thought we should have terminated.
For that brief moment, I felt a lifetime of guilt. Read the rest of this entry »