Down Syndrome Diagnosis: Dear New Parent
Posted: October 31, 2013 Filed under: advocacy, Down syndrome | Tags: Children, Down syndrome, Genetic disorder, hope, Love, Prenatal diagnosis 27 CommentsDear New Parent,
If you have found this place, you may have just discovered that your baby has Down syndrome. You are likely standing at a fork in the road. Whether your baby has been born yet or not, you’ll need to make choices now, in action or thought, that will change you forever.
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The Problem With Down Syndrome: Part 1
Posted: July 31, 2013 Filed under: advocacy, Down syndrome | Tags: Chromosome, disability, Down syndrome, Genetic disorder, genetics, Research 10 CommentsIs there a problem with Down syndrome? Is having 46 chromosomes fundamentally better than having 47? If one can designate a certain genetic condition as less than ideal, what are ideal genetics? More importantly, where does this contemplation lead us?
Researchers have discovered a new way to turn off the chromosome that causes Down syndrome, and I am troubled, let me tell you. It feels like the beginning of a brave new world, and my child may be the canary in the coal mine. Read the rest of this entry »
Kimchi Latkes 