Right Versus Easy: #JusticeForEthan

I know I have written about Robert Ethan Saylor’s homicide many, many times.  I’ve written about Ds awareness.  I’ve written about training.  I’ve written about action.  Feels like I’ve hashed and rehashed my feelings on what happened.  Yet.  Somethin’ is a botherin’ me.

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Open Letter to U.S. Attorney General Eric Holder and Maryland Attorney General Doug Gansler

Dear AG Holder and AG Gansler,

I write in part as a concerned citizen, but primarily as a husband and father.

By now I’m sure you’re aware of the tragic death of Robert Ethan Saylor, a young Maryland man who lost his life at the hands of three off-duty sheriff’s deputies over the price of a movie ticket.  Many have expressed outrage over the circumstances of Mr. Saylor’s death, including the apparent failure of local law enforcement to conduct a meaningful criminal investigation.  In my view, the community’s demand for an impartial investigation (by one or both of your offices) stands on strong moral and legal footing, and I support an independent investigation on these grounds.

Today, however, I wish to highlight a third ground for action: I need my wife back.

You see, I have a young son with Down syndrome.  That circumstance alone has triggered an all-consuming obsession on the part of my wife with “communication”–i.e., Facebook messaging with similarly situated mothers who are (apparently) much more interesting to her than me or our three children, including the baby at issue in her Facebook communications.

Regrettably, your inaction on the Saylor matter has exacerbated this problem beyond my wildest imagination.  Indeed, your foot-dragging has now inspired my wife–already a busy stay-at-home mother of three–to assume the role of a full-time grassroots community activist.  In that capacity–and in addition to the countless hours a day she (still) spends on “regular” Facebooking–she has now also become completely preoccupied with (a) participating in Twitter rallies, (b) sitting for online vigils, (c) co-authoring commentary on behalf of Down syndrome advocacy groups, and (d) otherwise doing anything she can to GET YOUR ATTENTION.

Needless to say, this state of affairs has placed considerable strain on our family.  This week, for example, marks our darling Chipmunk’s second birthday, though I believe my wife may not have noticed.  Fortunately, at this tender age, Chipmunk did not appear to be aware of her mother’s absence from her birthday festivities.  (Anyone interested–including my wife–can check out pictures from our Sunday celebration on Flickr and Instagram.  The park was lovely, and the ice cream cool and delicious.)

AGs Holder and Gansler, only you have the power to bring this chapter to a close.  I implore you: please, please, pretty please with cherries on top, wield your awesome power with mercy . . .

for me.

We need our Jisun back.  An independent investigation into the Saylor homicide is the only way to restore peace and order to our home.

Thank you very much.  I appreciate your careful consideration of this important matter.

Sincerely,

Latke

P.S.  My wife is a good sport and can handle a little ribbing, but seriously, this chapter really should come to a close.  Especially you Gansler: the homicide occurred on your home turf, and by all accounts local law enforcement appears to have very clearly circled the wagons to protect its own.  I’m not aware of any law enforcement agency that hesitates to fill prisons with the mentally ill and poor people of color for minor status offenses.  By what rationale do the facts here not even support an inquiry?  You are sworn to uphold the Constitution and protect the public.  That means making hard decisions, and bringing the law to bear on all who undermine public safety, even if those people are sworn law enforcement officers. Please do the right thing, not to mention your job.  Conduct an investigation of the Saylor homicide free of the personal entanglements and conflicts of interest that appear to have infected the matter at the local level.

*****************************

While I hope everyone can read this and have a chuckle, it also makes a larger point.  It is depleting to be marginalized.  This is not only because of the original insult, but because of the fight that must ensue to correct the wrong.  This is something that a person enjoying a great deal of privilege perhaps cannot fathom.  While my experience in the Ds community is different because my child has Ds, and not me, I do think that growing up as an immigrant lends me some perspective.  There are two injuries to a person’s psyche when being marginalized to the point that the disability community has.  First, you are told that you don’t count.  You’re told that your life doesn’t matter as much as another’s.  This is bad enough.  

I’d argue, however, that the greater insult is that you are forced to give up part of the fight, simply to live.  I wish I could spend my whole life trying to fix the world for my son, but I can’t because my family has needs right now that are entirely independent of any advocacy efforts. They need food, hugs, love, and attention. I hate that I can’t do it all; it feels like I am choosing between my individual family and our collective one.


However… what is the bigger picture?  A new friend suggested that the fight we fight now is actually to lay down the language of tomorrow.  Had I been the one born with Ds, I would have grown up in a generation whose parents fought to even raise me outside of an institution, to get me life-changing medical care, to even have society admit that I was worthy of an education.  I think Patti Saylor’s (mother of Robert Ethan Saylor) generation did that for my son.  And now, I will take what she did and hopefully lay down another narrative.  A narrative in which FULL inclusion and acceptance into society is the norm.  A world in which we do not debate Ethan Saylor’s right to equal treatment, nor point to his genetic makeup as an explanation for his wrongful homicide.

Well, that is the long haul.  I could no more fix the world’s mistaken notions of Ds as I could single-handedly fix the tragedy at the Boston marathon, or the latest, terrifying shooting at MIT. At times, the world can be a sad, scary place. I will hug my Taters tight, and try to appreciate what I have.  I will also be talking, talking, talking about my Taters, Patti’s son, and all of our collective children with the aim of recreating the narrative of disability for the next generation.  I don’t know what that narrative will ultimately be, but I’m hopeful.

~Jisun


Why I can’t let it go: #JusticeForEthan

I might keep writing about him for quite some time. If this bugs you, well, you might have to get over it. (I mean this in the kindest way, of course.) I’ve always voted. I try to make calls, send emails, sign petitions for just causes, but I’ve never been very vocal about it. Truth be told, I am uncomfortable with being so vocal, it has never been my thing. However, I’ve realized that Saylor’s story is part of a greater tragedy that divides and devalues our fellow human beings.

LGBT, straight, black, white, Ds, autism, wheelchair, man, woman, young and old, it really shouldn’t matter; you shouldn’t die over a movie ticket. I realize that not everyone sees disability rights as on par with other civil rights battles being fought today. Maybe that is why I feel the need to keep writing about this. Most people I know quickly agree that there is no basis for treating an individual differently based on religion, gender, race, or sexual orientation. But somehow, talk about disability, and it all gets murky. I’m not saying those other fights so aren’t very important, they are. At least there is a fight. Big. Fights. I can’t say quite as much for what has happened to Robert Ethan Saylor.

I’d love it if you read this blog post. She is a friend of mine, and has a beautiful little girl with Ds. She explains it all more succinctly than I ever have. She also outlines some actions to take.

Maybe until now you’ve felt like Saylor was only important to me because I have a kid with Down syndrome. Or maybe you just thanked your lucky stars that you don’t have a kid who will ever look like him, and won’t get mistreated the way he did. Maybe you don’t think he was mistreated, in which case I beg to differ. I also beg to differ that just because your kid doesn’t have Down syndrome, that you will not be affected by Saylor’s death.

His death is important. It speaks to our culture’s inability to see those with disability as deserving of basic equal treatment. And when you live in a world that cannot acknowledge a person’s basic human value, you live in a dangerous place. I have discovered I live in a society in which it is legal to pay someone with a disability less than minimum wage, simply because they are disabled. It is legal to forcibly sterilize those with disabilities in 15 states. Women with disabilities are sexually abused at much higher rates than their typical counterparts. Men with disabilities are beaten. Married adults are told they cannot live together.

The thing is, I didn’t know about this, until I was forced into a club that I never asked to join. I’m ok with being in this club now. In fact, I’m grateful, and I wouldn’t even change it. I love the club. But that means I have finally come to understand that this club is a club that 1 in 3 Americans will join at some point in their lives. One day, you may be Robert Ethan Saylor. Your child may be Robert Ethan Saylor.


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