If my son, who has 47 chromosomes, were to have a life threatening emergency in a hospital, what would happen? Would his fate be the same as every other child in the same situation?
In Oakland, California (where we live) at Oakland Children’s Hospital (where we take LP for most of his medical care), a little girl underwent surgery to help with her sleep apnea. Even though she seemed fine after waking up, soon afterwards she went into cardiac arrest after starting to bleed. The hospital declared her brain dead. To the hospital, the question wasn’t whether to not take that girl off life support, but when. Her family disagreed, and they’ve been in the news ever since. Read the rest of this entry »