From The Daddy Desk: Happy First Birthday, Son
Posted: November 18, 2013 Filed under: being Korean, disability, Down syndrome, From the Daddy Desk | Tags: Down syndrome, Family, fatherhood, First Birthday, Korean-American 45 Comments
Dear LP,
Daddy here.
Can you believe you turned one this weekend??? We celebrated the Kimchi Latkes way: by making you wear a funny Korean hat, stuffing ourselves with delicious food, and surrounding ourselves with loved ones.
We also, of course, reflected on your first year of life. Read the rest of this entry »
My Response to Ellen Stumbo’s “7 Ways to Help a Special Needs Family”
Posted: November 15, 2013 Filed under: advocacy, disability, Down syndrome, parenting | Tags: disability, Ellen Stumbo, Parenting, Special Needs 28 CommentsOk, I’m going to go out and disagree with another blogger. That is scary in bloggy land, but here I go, because this is an important discussion to have.
There are some things that Ellen Stumbo writes with which I very much agree. I liked what she wrote about her experience choosing to adopt a child with special needs. I wish adoption was seen as more of an option in our society, and I’m glad she wrote that article for National Adoption Month.
This article by Ellen Stumbo, however, about ways to help special needs families, makes me deeply uncomfortable. She starts by asserting that “we are no different than you”, but then goes on manufacture a host of differences under the “special needs” umbrella. She conflates special needs and disability, while making inaccurate generalizations about both. She suggests that special needs families need meals, babysitting, even gift cards. Read the rest of this entry »
Down Syndrome Diagnosis: Dear New Parent
Posted: October 31, 2013 Filed under: advocacy, Down syndrome | Tags: Children, Down syndrome, Genetic disorder, hope, Love, Prenatal diagnosis 27 CommentsDear New Parent,
If you have found this place, you may have just discovered that your baby has Down syndrome. You are likely standing at a fork in the road. Whether your baby has been born yet or not, you’ll need to make choices now, in action or thought, that will change you forever.
Read the rest of this entry »
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