Guilt, forgiveness, and surrender.

I’m part of a Facebook group of moms with babies born around the same time, who also have Down syndrome.  Today a discussion came up about prenatal testing, termination, and getting a diagnosis before vs. after birth.  Well, I went and stuck my foot in my mouth there, carelessly saying something that made some other mothers feel judged about their decision to do the prenatal tests.  I profusely apologized, and all is well I think, but I got to pondering… why had I done that?  I couldn’t stop posting to that thread, my urge to keep letting out these stream-of-consciousness thoughts would not stop. What was that???

Mother guilt.  Awful, irrational, inescapable mother guilt that I am just starting to face.   Read the rest of this entry »


Tap, tap, tap.

Some people have asked me how we knew to even think LP might have Down Syndrome.  I’m sure many of you are curious.  I would be, as well.  I’m not sure when it started.  When I think back on those few weeks, they seem blurry already, but what I do remember are flashes.  Flashes of feeling, thought, memory, perception; I don’t know.  And there was something like a persistent, but unlocatable tapping noise that I only heard when I was alone. With each of those flashes, there was another tap.  Tap…  Tap…  Tap…  each time it was like a marble added to a scale, getting heavier and heavier, to show me something I didn’t want to see.  
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Why you shouldn’t check your phone at stoplights…

I was driving home from a friend’s house today, and truth be told, I was telling pretty sorry for myself.  I’ve really been stuck on this sadness over the realization that I can’t protect my family from the world’s misconceptions of disability. Read the rest of this entry »


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