Robert Saylor’s death is not about lack of Down syndrome awareness.

Yeah, I really do think this.  I’ve used this blog to talk about our family’s personal experiences, but Robert Saylor’s death is a scary glimpse into LP’s (possible) future, and I really need to get this off my chest. Read the rest of this entry »


60/40 Post: Three good things, two bad.

Seems like a 60/40 day.  Mostly good.   Read the rest of this entry »


Being Systematized

We went to LP’s assessment for EI services this week.  The assessment consisted of a doctor and our services coordinator asking me a bunch of questions, the service coordinator leaving halfway through to attend another meeting, and LP getting tired and mad about yet another poking and prodding session.  I’m pretty sure the little dude swore at me afterwards.  Fortunately, he doesn’t know how to make any consonant noises.  So it was more like “Aaahhh… Ooooouu”.  I’m onto you, LP.  I know you didn’t want to follow pen lights around or show off your tunny time skills, but that is no way to speak to your mother.
Read the rest of this entry »


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