Nightmare Come True: Police Training, Autism, and Down Syndrome

Sometimes I spend time worrying about my infant son’s future.  My son with Down syndrome.  My son with a disability.  My son, a human being.

Among the things I worry about is that the world will see him as nothing but a problem.  An anomaly, a special circumstance, some thing to be “handled” and “managed”.  I worry that people will take one look at him and hold him up to a stereotype, and he’ll never have a chance to be fully human.  If he matches the stereotype, everything he says or does will be a foregone conclusion.  If he deviates from the stereotype, he’ll be nothing but an even greater abnormality.

My fears became reality today. Read the rest of this entry »


Dear Mama: Just Checkin’ In

Dear Mama,

I hear through the grapevine that you’re planning on writing an update post about me every three months.  Well, uh, I’m ten months old, ya know.  Nine months went right on by and you were busy blabbing and pontificating.  I’m just going to be honest with you, I think you get sidetracked all too often.  Dad told me that it happened before I came around, so don’t go trying to pin it on me.  Don’t fret, I don’t judge you.  I’m ten months old, my judgment is reserved for not getting enough milk and giving the stink eye to my sisters for stealing my stuff.  Don’t forget about little ol’ me though.  I happen to like these letters-that-aren’t-really-from-me-but-your-way-of-talking-to-the world-about-me.  Heck, I just like stuff about me. Read the rest of this entry »


On Writing, and… I Got Published.

I’ve always loved writing.  There’s something endlessly fascinating about putting words together.  I envision what comes out of my head as visible music, where the words touch, repel, arch, and dance with each other.  When I read the words of others, sometimes it feels like taking in a song through my eyes.  Words have frequencies and cadence.  No person puts them together in the same way and each time, the result is a unique song that to be repeated, shared, and revisited.  Good writers weave thick chords of musicality into their words that can be examined and felt over, and over, again.

Writing helps organize my feelings.  If one goes to a symphony performance, there is always the tune up in the beginning.  A single note rings out, and the entire symphony joins.  For a minute, it is cacophony.  Discordant noises rub against each other.  Sometimes you hear the quick flit of a scale being played.  Then, the noise settles down and the story unfolds.  Sometimes I’m surprised at what comes out.  Sometimes I revisit what I’ve written and realize I’ve already changed my tune.

Me?  I feel like I’m more in harmonica territory, rather than full symphony.  Still, the act of writing is healing and cathartic for me, so I keep doing it.

Weeks ago, I submitted some of my writing to various places with great trepidation.  I worried about rejection, but even more than that, I knew that I wasn’t entirely clear on why I was doing it.  Mostly, I thought I wanted to reach out to a bigger audience to talk about Down syndrome.  I needed to know if my ideas were shared by more than a few friends. I needed the hope of finding connection with more people who saw parenting a child with Down syndrome similarly as I do. People who would stretch my thinking. I’ve already found many of these people through this blog but I wanted more. It was also an act of spreading my writing wings, as one friend so aptly described it.

Finally, I wanted to know if anything I was writing struck a chord with anyone who didn’t already know me.  I’d had plenty of people I didn’t personally know follow this blog, but part of me questioned it.  Maybe this is reflects my own lack of self-esteem.  Yeah, save it for the therapist, I know.  Problem is, therapy is expensive, so here I am instead.

About those submissions.  Mamalode took my post about my sister dying of SIDS and is running it today.  What I wrote was only tangentially about Down syndrome, which I initially thought was disappointing, but ultimately, it feels good.  It felt good to hear that someone else thought what I had to say was valuable.  Plus, not everything has to be about Down syndrome.  I ponder Down syndrome and disability a lot, but I also realize that it might show a emphasis in my daily thoughts that isn’t there.  I realized that this has been an act of spreading my wings, after all.

So… I’d be eternally grateful if you visited my story on Mamalode (click HERE) and if you’re so inclined, please share with anyone who would find it meaningful.

Well, what started out as a short post turned into something completely different.  Thanks for reading, world.


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