Our Collective Voice: #JusticeForEthan
Posted: July 17, 2013 Filed under: advocacy, Down syndrome | Tags: disability, Down syndrome, human rights, Maryland, police brutality, Saylor 22 CommentsTo my community of parents, friends, and individuals touched by Down syndrome, please open your hearts to what I have to say:
If we do not speak up and publicly condemn Ethan Saylor’s death—his right to live—no one will. Read the rest of this entry »
Mama, You Lied???
Posted: July 12, 2013 Filed under: advocacy, Down syndrome, parenting, personal growth, Uncategorized | Tags: development, Down syndrome, Lies, Milestones, Parenting, travel, Trisomy 21 22 CommentsI lied about my son today.
We took the Taters cross-country to see Latke’s parents this week. We had a great time, the kids got spoiled, all was well.
On our return flight, I sat by myself with LP, while Latke had the girls across the aisle.
As I sat down, the man by the window smiled and reached out for LP’s hand. I have to admit every time a stranger takes an interest in LP I still have a moment of trepidation. I don’t blurt anything out anymore, but I still hold my breath for a second, waiting for that whiff of scrutiny. Read the rest of this entry »
Down Syndrome, Science, and Mystery
Posted: July 8, 2013 Filed under: advocacy, Down syndrome, medical stuff | Tags: chimerism, chromosomal abnormality, Down syndrome, genetics, mosaic Down syndrome, Trisomy 21 25 CommentsMystery. The unknown. The misunderstood. Science promises to unravel many mysteries. What mysteries about my child with Down syndrome might science unravel?
Becca from The Bates Motel poses this topic in this blog hop (go hop around and read, just make sure you come back, you dig?). While I must say I don’t think research will unravel any mystery about my individual child, I do want more research. I want it badly. Why? Researching Down syndrome could shine new light on the entirety of our genetic existence. Read the rest of this entry »
Kimchi Latkes 