Sandman Schmandman…
Posted: March 3, 2013 Filed under: Down syndrome, medical stuff | Tags: Down syndrome, Polysomnography, Sleep, Sleep apnea, Sleep disorder 4 CommentsDear Mama,
Well. Let me just come out and say it. Stop sticking crap on my hot baby bod. It really displeases me. And let me remind you, I don’t cry. When my sisters plaster me with stickers, scream in my face (lovingly), you forget to feed me, I have to do tummy time… I am very understanding of all these things. My extra chromosome really seems to have you all in a tizzy so I figure I’ll cut you a break on some stuff.
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Matters of the Holey Heart
Posted: February 28, 2013 Filed under: Down syndrome, medical stuff | Tags: congenital heart defect, Down syndrome, echocardiogram, worry 4 CommentsDear Mama,
I didn’t love yesterday. You took me to one of those places that have no windows and I had to get naked while some strangers weighed and measured me. Those scales are cold, if you haven’t noticed. Please don’t ever put me on one again. You can obviously tell I’m growing because your arms are starting to get tired when you hold me, I don’t know why you keep needing a number. Then you put a bunch of sticky wires all over my hot baby bod. Didn’t like that either, especially when you peeled them off, one by one. Read the rest of this entry »
Status Report.
Posted: February 22, 2013 Filed under: Down syndrome, medical stuff | Tags: Down syndrome 3 CommentsWell, the taters are all asleep, and it is Friday night. Had a friend over, ate some takeout. Pretty good. Here is what is going on in our little corner of the world…
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Kimchi Latkes 