Dear Mama, Let’s Talk About Me.
Posted: July 19, 2013 Filed under: advocacy, Dear Mama, Down syndrome, parenting | Tags: Down syndrome, Everyday Life, humor, Milestones, Parenting, Trisomy 21 8 CommentsDear Mama,
Let’s talk about me, shall we? I gotta be honest, ever since you calmed down with the whole “Down syndrome” thing, I feel like I’m not getting nearly as much attention as I should have. I mean, I guess you’re doing all this “advocacy” stuff, but honesty, that looks suspiciously similar to when you say you’re hanging out with your new online mama friends. Just sayin’. I don’t mind being a supernatural-angel-gift-from-God if that means I get all your attention. Wink, wink. Read the rest of this entry »
Our Collective Voice: #JusticeForEthan
Posted: July 17, 2013 Filed under: advocacy, Down syndrome | Tags: disability, Down syndrome, human rights, Maryland, police brutality, Saylor 22 CommentsTo my community of parents, friends, and individuals touched by Down syndrome, please open your hearts to what I have to say:
If we do not speak up and publicly condemn Ethan Saylor’s death—his right to live—no one will. Read the rest of this entry »
Mama, You Lied???
Posted: July 12, 2013 Filed under: advocacy, Down syndrome, parenting, personal growth, Uncategorized | Tags: development, Down syndrome, Lies, Milestones, Parenting, travel, Trisomy 21 22 CommentsI lied about my son today.
We took the Taters cross-country to see Latke’s parents this week. We had a great time, the kids got spoiled, all was well.
On our return flight, I sat by myself with LP, while Latke had the girls across the aisle.
As I sat down, the man by the window smiled and reached out for LP’s hand. I have to admit every time a stranger takes an interest in LP I still have a moment of trepidation. I don’t blurt anything out anymore, but I still hold my breath for a second, waiting for that whiff of scrutiny. Read the rest of this entry »


