Guilt, forgiveness, and surrender.
Posted: February 26, 2013 Filed under: Down syndrome, emotional stuff, personal growth | Tags: Down syndrome, guilt, Motherhood, Parenting, pregnancy, Prenatal diagnosis 3 CommentsI’m part of a Facebook group of moms with babies born around the same time, who also have Down syndrome. Today a discussion came up about prenatal testing, termination, and getting a diagnosis before vs. after birth. Well, I went and stuck my foot in my mouth there, carelessly saying something that made some other mothers feel judged about their decision to do the prenatal tests. I profusely apologized, and all is well I think, but I got to pondering… why had I done that? I couldn’t stop posting to that thread, my urge to keep letting out these stream-of-consciousness thoughts would not stop. What was that???
Mother guilt. Awful, irrational, inescapable mother guilt that I am just starting to face. Read the rest of this entry »
Status Report.
Posted: February 22, 2013 Filed under: Down syndrome, medical stuff | Tags: Down syndrome 3 CommentsWell, the taters are all asleep, and it is Friday night. Had a friend over, ate some takeout. Pretty good. Here is what is going on in our little corner of the world…
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Ok, I guess it has to start somewhere.
Posted: February 19, 2013 Filed under: medical stuff | Tags: Down syndrome 4 CommentsWell, I’m pretty sure that LP has something called laryngomalacia. It is basically medical gobbledy-gook speak for when a person’s airways are floppier than usual. There are different reasons for it, but in LP’s case, it is probably caused by his hypotonia (another gobbledy-gook term for low muscle tone). It hear from other moms that there is a higher likelihood of also having something called a laryngeal cleft, which as far as I can tell is a congenital issue with the way that part of the trachea forms that causes food or fluid to pass into the airway.
What does this mean? Could be nothing. Could be a fairly big something. Read the rest of this entry »


