Guilt, forgiveness, and surrender.

I’m part of a Facebook group of moms with babies born around the same time, who also have Down syndrome.  Today a discussion came up about prenatal testing, termination, and getting a diagnosis before vs. after birth.  Well, I went and stuck my foot in my mouth there, carelessly saying something that made some other mothers feel judged about their decision to do the prenatal tests.  I profusely apologized, and all is well I think, but I got to pondering… why had I done that?  I couldn’t stop posting to that thread, my urge to keep letting out these stream-of-consciousness thoughts would not stop. What was that???

Mother guilt.  Awful, irrational, inescapable mother guilt that I am just starting to face.   Read the rest of this entry »


Status Report.

Well, the taters are all asleep, and it is Friday night. Had a friend over, ate some takeout. Pretty good. Here is what is going on in our little corner of the world…
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Ok, I guess it has to start somewhere.

Well, I’m pretty sure that LP has something called laryngomalacia.  It is basically medical gobbledy-gook speak for when a person’s airways are floppier than usual.  There are different reasons for it, but in LP’s case, it is probably caused by his hypotonia (another gobbledy-gook term for low muscle tone).  It hear from other moms that there is a higher likelihood of also having something called a laryngeal cleft, which as far as I can tell is a congenital issue with the way that part of the trachea forms that causes food or fluid to pass into the airway.

What does this mean?  Could be nothing.  Could be a fairly big something.   Read the rest of this entry »


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