You’re Just Going Along, and then… Woah.
Posted: March 27, 2014 Filed under: Down syndrome, emotional stuff, kids, personal growth, the future | Tags: disability, Down syndrome, pregnancy 58 CommentsFriends. I have some news. Read the rest of this entry »
Stream of Consciousness: New Year’s Thoughts
Posted: January 3, 2014 Filed under: Down syndrome, emotional stuff, personal growth | Tags: 2014, diagnosis, disability, Down syndrome, New Year's, Parenting, pregnancy, Trisomy 21 42 CommentsI’ve sat down and started half a dozen posts about the holidays, the end of the year, our family’s life in the past twelve months. Nothing really came.
I’ve had a little bit of a hibernation the past few weeks. A combination of needing a social media break (when your kids start playing a game called “I have to check my messages”, it is time to look at the ol’ priorities), holiday madness, and smidgen of depression. Read the rest of this entry »
I’m Removing My Prenatal Testing Halo.
Posted: June 19, 2013 Filed under: Down syndrome, emotional stuff, personal growth | Tags: Amniocentesis, CVS, Down syndrome, miscarriage, Mother, pregnancy, Prenatal diagnosis 53 CommentsI have had my moments of self-righteous judgement. Shocking, I know. I’ve strapped on my righteous halo in secret, just for comfort.
In the early weeks after discovering LP has Trisomy 21 (Down syndrome), I spent time pontificating on life and riding some emotional waves. During that time, for a brief moment, despite all my reservations on prenatal testing, I wished we hadn’t opted out. For a brief moment, I thought we should have terminated.
For that brief moment, I felt a lifetime of guilt. Read the rest of this entry »


